How to help care­gi­vers? This is a ques­tion that makes sense because the disease spares nei­ther the patient nor the per­son or per­sons who care for him.
When a per­son learns that he or she is serious­ly ill, his or her life changes in a few seconds. Indeed, the first thing that those around them think about is the shock that the sick per­son feels. Of course, we feel sor­ry for the people around them, but we don’t ima­gine the direct conse­quences that the care­gi­ver will have to face.
First, the care­gi­ver sees his or her life change in an ins­tant, just like the patient. Second­ly, it often hap­pens (if the patient and the care­gi­ver are toge­ther) that the disease pre­vents the sick per­son from wor­king. The finan­cial situa­tion then res­ts sole­ly on the care­gi­ver. He/she has to do eve­ry­thing to keep his/her job, but he/she imme­dia­te­ly puts on his/her care­gi­ver’s “hat” when he/she leaves work. The sick per­son receives much less money after 3 years in the case of a very long ill­ness that pre­vents him from wor­king again. See the fol­lo­wing article here. Third­ly, the care­gi­ver must some­times sup­port both the patient AND the direct entou­rage of the patient (chil­dren, parents…). The care­gi­ver must some­times take it upon him/herself to sup­port the aggres­si­ve­ness of the patients towards him/her. See the Leva Labo­ra­to­ries forum page
l'enfermement des aidants
the big support
Thus, we can wit­ness the total col­lapse of a fami­ly that was the very example of a uni­ted fami­ly living in hap­pi­ness. Indeed, I know what I am tal­king about because I expe­rien­ced this with a fami­ly that took care of me from the time I was 6 months old until I was 6 years old. In sum­ma­ry, the second son of the fami­ly became ill with AIDS in 1988. As a result of his death 7 years later, his mother, who was his pri­ma­ry care­gi­ver, deve­lo­ped lung can­cer and died in 2001. (She had never smo­ked in her life). ) Devas­ta­ted by his mother’s death, his first son fell into alco­ho­lism. He died less than a year ago.
The situa­tion is urgent: today, the accom­pa­nying per­son is the one who is left behind; he or she runs real phy­si­cal and psy­cho­lo­gi­cal risks. Second part of the article… to fol­low soon.
the big support

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